Diabetes Advocactes #MasterLab 2014 – Getting the attention of decision makers – Rebecca Killion (PWD)

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http://diabetesadvocates.org/masterlab/
Getting the attention of decision makers – Rebecca Killion (PWD)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – How #diabetes can do it too: a roadmap for diabetes advocacy

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http://diabetesadvocates.org/masterlab/
Manny Hernandez and Bennet Dunalp – How diabetes can do it too: a roadmap for diabetes advocacy

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – @ManganielloHCM What has been accomplished by other patients

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http://diabetesadvocates.org/masterlab/
What has been accomplished by other patients (and how) – Michael Mangianello (HIV/AIDS activist,HCM Strategists)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – Roundtable: "What I wish patient advocacy looked like"

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This panel consisted of
Mike Swearingen (Moderator)
Panel: Christel Aprigliano (PWD),
Andy Balo (Dexcom),
Bruce Taylor (Roche),
John Agos (Sanofi),
Melissa Schooley (Medtronic),
Stayce Beck (FDA)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – Stayce Beck @US_FDA, Regulatory interest in public participation

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http://diabetesadvocates.org/masterlab/
Regulatory interest in public participation by Stayce Beck from the Food & Drug Administration (FDA).

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – Keynote: Paul Madden, Today’s Diabetes Advocacy Environment

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http://diabetesadvocates.org/masterlab/
Keynote Address by Paul Madden: Today’s Diabetes Advocacy Environment.

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – Opening by @AskManny

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http://diabetesadvocates.org/masterlab/
Opening Remarks by Manny Hernandez, President and Founder of The Diabetes Hands Foundation.

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

TuDiabetes Live Interview with Nwaokoro Joakin Chidozie, treating PWD in Nigeria

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Nwaokoro Joakin Chidozie has a BS in nursing and an MS in public health from the University of Malta. He has been a lecturer in the department of Public Health, Federal University of Technology Owerri, Nigeria since 2008. Joakin also studied diabetes at Roethampton University in London England with the sponsorship of Federation of European Nurses on Diabetes (FEND), and is currently finishing his PhD thesis on “Epidemiology, Distribution and Socioeconomic Impact of Type 2 Diabetes in Imo State, Nigeria”. He has worked in the field of nursing in Malta, New York, Toronto, Canada and London England.

Joakin founded an NGO called “Hammer Home the Glucose”, which operates with over one hundred volunteers. Their main focuses are women and children with diabetes, diabetes and hypertension screening and gestational diabetes in rural areas of Nigeria. This organization has given hope to this vulnerable group of people who would have died as a result of diabetes. This hope is substantiated by the unwavering donation of Insulin from Insulin for Life USA and of Australia. They are currently negotiating for further help with Life For A Child program for insulin donation.

Recently, Hammer Home the Glucose was hit hard by the loss of a young student who died as a result of Diabetic Ketoacidosis because she could not access insulin on time. As a result of this loss, the organization has begun screening students from different universities who are identified as high risk. Their main challenge in this effort is a lack of glucometers, test strips and other accessories.

Joakin himself has type 2 diabetes.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

TuDiabetes Live Interview with Carol and Mark Atkinson, Insulin for Life

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Carol Atkinson is the Program Coordinator for Insulin for Life

USA. She also serves as President of Hope on the Move, a not-for-profit that provides international medical and dental relief. For this latter effort, she has overseen the travel of over 300 medical and dental professionals, on approximately 20 foreign and domestic mission trips, over the last 12 years.

Mark Atkinson is currently an Eminent Scholar for Diabetes Research at The University of Florida. The author of over 300 publications, Dr. Atkinson is beginning his 29th year of investigation into the field of type 1 diabetes. Dr. Atkinson is an internationally recognized authority on multiple aspects pertaining to type 1 diabetes, with particular interests in disease prediction and prevention, the role for environment in the initiation of the disease, stem cells and pancreatic regeneration, pancreatic pathology, clinical trials seeking to prevent or reverse the disease, and the identification of markers of tolerance and immunoregulation.

Dr. Atkinson has been active in encouraging improvements in diabetes care and management in third world nations whose access to insulin and other materials/education are limited. Beyond this, Dr. Atkinson started a foundation for humanitarian causes, primarily related to providing medical and dental care to third world. In addition, he is an international advisor to Life for a Child and serves as the President of Insulin for Life USA, an organization dedicated to providing insulin to third world individuals who do not have access to insulin.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

TuDiabetes Live Interview with Bennet Dunlap: D-Advocacy and the FDA

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In early January 2014, the US Food and Drug Administration came out with new draft guidance for blood glucose meter performance and their accompanying meters. An FDA guidance document, when finalized, is a summary of the FDA’s current thinking on what information the FDA will look for when deciding whether to give clearance to a manufacturer for its meters and strips. Bennet Dunlap has been advocating passionately for tighter controls on glucose meter accuracy through the website StripSafely.com, and has become a guru of advocacy at the FDA.

Join us to learn from the master himself how we, as people with diabetes, can advocate for our own health and safety with the US organization that regulates the medications and technologies we need to live. It’s important! Come get involved.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

TuDiabetes Live Interview with Merith Basey, the "100 Campaign"

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Merith Basey, MSc

Merith’s introduction to global public health and Type 1 diabetes was via AYUDA in Quito, Ecuador, following her postgraduate studies on Latin America at La Universidad Complutense in Madrid. She went on to serve as AYUDA’s first Country Officer in Ecuador, later joining the headquarters in Washington DC as Global Program Director, where she was responsible for growing AYUDA’s country programs and strengthening local capacity in Ecuador, Bolivia, Dominican Republic and Belize.

Since 2012, Merith has also worked closely with the diabetes community in Haiti initially in support of the first diabetes education camp for young people with Type 1 diabetes. She is continually seeking ways to help strengthen the work of AYUDA’s partner FHADIMAC (www.fhadimac.org) on the ground.

As a result of almost a decade of witnessing the reality that many children and their families still do not have consistent access to insulin and other diabetes supplies, and disheartened by the lack of global action towards this; Merith and a small team of advocates with experience in diabetes communities in resource poor settings came together to launch the 100 Campaign, with the support of the International Insulin Foundation.

About the Campaign

The International Insulin Foundation (IIF) has been active in the area of Type 1 diabetes in the developing world for 10 years. On World Diabetes Day (November 14th) 2012, the IIF launched the “100 Campaign” with the goal of achieving 100% access to insulin by 2022, the 100th anniversary of insulin use to treat a person with Type 1 diabetes.

Access to Insulin:

While barriers to insulin access are most prominent in resource-poor countries, barriers also exist in other parts of the world. In developing countries the cost of insulin can consume as much as 25% of a family’s income. In the USA some uninsured individuals ration their insulin to save money, and end up in emergency rooms or with avoidable diabetes-related complications. The 100 Campaign was started as a means to address these and other issues related to barriers to insulin access.
Follow us at: facebook/100Campaign
@100Campaign
@100Campaign_esp (in Spanish)

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

TuDiabetes Live Interview with Jeff Hitchcock and Kerri Sparling, Spare a Rose Save a Child Campaign

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For children around the world with type 1 diabetes, lack of access to insulin is the most common cause of death. And in some areas of the world, most children with diabetes can expect to live less than a year past their diagnosis date – if they’re diagnosed at all.

This Valentine’s day, our community can help change that.

Spare a Rose, Save a Child is simple: buy one less rose this Valentine’s Day and share the value of that flower with a child with diabetes in the developing world. Your loved one at home still receives flowers and you both give help to a child with diabetes who desperately needs it.

A rose is about 5 bucks, for that one rose, IDF can give a child one month of life. A dozen roses, a year of life for a child with diabetes.

We’re hopeful that you will embrace this cause this year.

Here’s what you can do to help

Kerri Sparling has been living with type 1 diabetes for over 27 years, diagnosed in 1986. She manages her diabetes and lives her life by the mantra “Diabetes doesn’t define me, but it helps explain me.”

Kerri is a passionate advocate for all-things diabetes. She is the creator and author of Six Until Me, one of the first and most widely-read diabetes patient blogs, reaching a global audience of patients, caregivers, and industry. Well-versed in social media and its influence on patients, Kerri presents regularly at conferences and works full-time as a writer and consultant. Her first book, Balancing Diabetes (Spry Publishing), is scheduled for release in Spring 2014.

Jeff Hitchcock is the president and founder of Children with Diabetes, Inc. (CWD). CWD hosts one of the largest diabetes-related web sites in the world at www.childrenwithdiabetes.com. The site receives over 20,000 visitors per day from countries around the world. CWD also hosts educational and support conferences throughout the year, including its national Friends for Life conference held each year in Orlando, Florida.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube