TuDiabetes Live Interview – #MedicareCoverCGM: panel discussion

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Merle Gleeson, founder of Type 1 Diabetes Lounge

Merle was diagnosed with type 1 diabetes in 1963, when medical conditions were not openly discussed and there was little support for families and children who were struggling with this disease. In 1997 Merle founded Type 1 Diabetes Lounge as a forum for education and support for adults with type 1 diabetes in the Chicago area.

Lynn Wickwire, Consumer advocate at Joslin Diabetes Center

Lynn Wickwired has been involved in health policy work for a decade. He is married with a son, daughter and 2 granddaughters. Lynn has lived with diabetes for 70 years and uses an insulin pump and CGM.

Richard Vaughn

Diagnosed with diabetes in 1945, after 69 years Richard has no severe diabetes-related complications. A former college math teacher, Richard has been married for 50 years, has 2 sons and 2 grandkids, and is a local celebrity on TuDiabetes for his longevity with diabetes and consistent, positive presence in the community. He eagerly helps fellow PWD on several online networks, including a facebook group for Joslin Gold Medalists, in addition to his friends on TuDiabetes.

Dan Fleshler, The Insulin Chronicles

Dan was diagnosed with Type 1 diabetes in 1962, and for the next 50+ years he knew more details about the Boston Red Sox than about the inner workings of his body. In 2012 Dan decided to read everything he could about diabetes, hoping to learn about its link to depression, which had plagued him for much of his life. Read his blog to learn what happened next, and his recent article in Diabetes Mine about Medicare and CGM.

Joanne Milo, The Savvy Diabetic

Joanne has had Type 1 diabetes for over 48 years. When she was diagnosed, at the age of 11, the tools available to manage and control diabetes were minimal. Urine testing and animal insulin, no insulin pumps or HbA1c testing, and certainly no CGMS.

In the past 5 years Joanne has been hospitalized several times, and has written a book about surviving the system.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

TuDiabetes Live interview with Steven, Devon and Grasshopper, creators of #NoPricks

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Prometheon Pharma launched it’s #NoPricks campaign in order to help bring it’s needle-free insulin delivery patch to market. Here’s their mission statement:

At Prometheon, we foresee persons with diabetes no longer needing to inject themselves daily with insulin. We envision vaccines that will not spoil in hot climates and can be administered easily, painlessly, and inexpensively to impoverished children in developing countries. We imagine once-weekly drug patches for mental health disorders and chronic diseases that maximize adherence to prescribed therapy by greatly simplifying drug regimens. We dream of fields and streams absent of medical waste because biodegradable products and manufacturing processes are created to protect the fragile ecosystems on our planet. Above all, we believe advances in drug delivery and new drug discovery can be made accessible to everyone in the world. At Prometheon, we are devoted to our mission and promise to advance global health equity and improve human existence through the pursuit and translation of scientific discovery.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

TuDiabetes Live Interview with Chris and Lorraine Stiehl

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Lorraine and Chris Stiehl live in San Diego and have been married for nearly 30 years. They have a long history of providing passionate support for numerous diabetes causes including the Diabetes Hands Foundation (DHF).

Due to his positive attitude and zest for life, Chris has survived 54 years of type 1 diabetes. Chris is a management and marketing strategist who has worked for numerous Fortune 500 companies. For the past 15 years, he and Lorraine have owned their own business, StiehlWorks, and have helped hundreds of corporate and non-profit clients to help assess the “Voice of the Customer.”

Lorraine worked for JDRF for 14 years and currently serves on the JDRF International Board and leads JDRF Advocacy. Lorraine was honored to have been named the 1992 JDRF National Staff Member of the Year and also the 2010 JDRF National Volunteer of the Year. For nearly 13 years Lorraine worked for the University of California, San Francisco (UCSF) Diabetes Center. She currently serves on the DHF Board of Directors.

Beside DHF and JDRF, Lorraine and Chris have been active volunteers in the Behavioral Diabetes Institute, the diaTribe Foundation, TCOYD, Insulin Dependence, California Institute for Regenerative Medicine and the Sanford Consortium for Regenerative Medicine.
Defying the odds – living with diabetes for more than half a century

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

TuDiabetes Live Interview with Andrew Deutscher, D-parent and author of Typecast

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Andrew Deutscher is the author of Typecast: Amazing People Overcoming the Chronic Disease of Type 1Diabetes, an inspiring book he wrote after his two-year-old son was diagnosed with the disease. Andrew is an active volunteer with the Juvenile Diabetes Research Foundation and the American Diabetes Association.

He is the Vice President of Business Development at The Energy Project, a company that guides organizations to optimize the productivity of their teams through the science of high performance.

A charismatic and energetic speaker, Andrew has delivered keynote addresses and lead workshops for companies worldwide, including Coca Cola, Apple, Genentech, PWC, Lego, GE Healthcare, American Express, and many others. Andrew has served as a speaker and moderator at events for the New York State Broadcasters Association and the National Association of Broadcasters. He has been a regular guest lecturer at the University of Georgia MBA program, and has also lectured at Cornell, NYU, and Syracuse.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

TuDiabetes Interview with Krista Maier @AmDiabetesAssn about proposed Nutrition Fact Label @US_FDA

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Krista Maier is the Associate Director of Public Policy for the American Diabetes Association. Her primary areas of focus include state and federal policies related to Medicaid, primary prevention of type 2 diabetes and Affordable Care Act implementation. Krista earned her Juris Doctor degree from American University Washington College of Law in Washington, D.C., and her bachelor’s degree in Speech Communication from Miami University in Oxford, Ohio.

Topic Description

On March 2, 2014, the Food and Drug Administration (FDA) released two proposals to update the Nutrition Facts label found on most food packages in the United States. Since a healthful eating pattern is a key component of diabetes management and prevention, accurate and easily understandable food labels are essential in ensuring individuals with and at risk for diabetes are able to follow their individualized eating plans and achieve their daily nutrition goals.

Krista will provide an overview of the changes being proposed by the FDA, focusing on those that may have the greatest impact on individuals with and at risk for diabetes. In addition, in this interview she will let consumers know how they can make their voices heard and tell the FDA what they like about the proposed changes—or how they can be improved. Comments are due to the FDA by Aug. 1, 2014.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – @AskManny Wrap up and calls to action

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http://diabetesadvocates.org/masterlab/
Wrap up and calls to action — Manny Hernandez (DHF)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – @davidstrasberg Making a successful ask, Role Plays

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http://diabetesadvocates.org/masterlab/
Making a successful ask, Role Plays — David Lee Strasberg

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – Kerri Sparling @SixUntilMe on Mobilizing the diabetes community

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http://diabetesadvocates.org/masterlab/
Mobilizing the diabetes community – Kerri Sparling (SixUntilMe)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube

Diabetes Advocates #MasterLab 2014 – Understanding Diabetes – Kelly Close, Adam Brown @diatribenews

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http://diabetesadvocates.org/masterlab/
Understanding Diabetes: Knowledge & Solutions – Kelly Close, Adam Brown (Close Concerns, diaTribe)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube