Live interview with Pediatric Endocrinologist Shara Bialo

Shara Bialo is a board-certified pediatrician and is currently in her final year of Pediatric Endocrinology fellowship training at Brown University. She was diagnosed with Type 1 Diabetes at 9 years of age and has experienced her share of diabetes-related ups and downs. Ultimately, it helped shape her decision to pursue medicine and she now draws on her experience as both a patient and a physician to help others navigate life with diabetes.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live Interview with Mary Rooney: clinical trial participant

Mary Rooney, Participant in T Regulatory Cells (Treg) Clinical Study

“Living with type 1 diabetes is like having a second job with no days off,” says Mary Rooney, who was diagnosed with type 1 diabetes in March 2011.

Having moved to San Francisco a year prior to finalize her doctorate in child psychology, Mary had to manage the stress of being diagnosed with a chronic disease without the benefit of nearby friends and family.

In researching type 1 diabetes, Mary learned that slowing the destruction of beta cells is critical to managing the disease, and she sought out clinical studies in this area. Through her job at University of California, San Francisco (UCSF), she learned about three ongoing studies at UCSF’s Pediatric Diabetes Program investigating different approaches to preserving beta cell function, including one evaluating the T Regulatory Cells (Treg) immunotherapy. Mary was eligible for the study, and soon became the first human patient enrolled in the Treg clinical program.

In the study, Mary’s blood was drawn, and after 14 days she was reinfused with the expanded Treg cells. During 24 hours of observation, no adverse events were reported. Follow-up blood tests to measure C-peptide levels – an indicator of pancreatic islets beta cell function – continued for two years.

Today, at 38, Mary is healthy and works as a child psychologist. Managing her diabetes can be demanding, but Mary makes an effort every day to calculate her calorie intake, exercise and monitor her blood sugar. Three years after treatment with Treg, Mary is still in the “honeymoon phase,” the period of time following the onset of diabetes when the pancreas is still able to produce significant amounts of insulin. The “honeymoon phase” period varies for each individual, but seldom lasts more than one year.

Based on what she has learned about type 1 diabetes and Treg from physicians and researchers, Mary now believes that participating in the Treg study was one of the most important decisions she made – and she encourages others diagnosed with type 1 diabetes to investigate all their treatment options as soon as possible following diagnosis.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live Interview – #MedicareCoverCGM: panel discussion

Merle Gleeson, founder of Type 1 Diabetes Lounge

Merle was diagnosed with type 1 diabetes in 1963, when medical conditions were not openly discussed and there was little support for families and children who were struggling with this disease. In 1997 Merle founded Type 1 Diabetes Lounge as a forum for education and support for adults with type 1 diabetes in the Chicago area.

Lynn Wickwire, Consumer advocate at Joslin Diabetes Center

Lynn Wickwired has been involved in health policy work for a decade. He is married with a son, daughter and 2 granddaughters. Lynn has lived with diabetes for 70 years and uses an insulin pump and CGM.

Richard Vaughn

Diagnosed with diabetes in 1945, after 69 years Richard has no severe diabetes-related complications. A former college math teacher, Richard has been married for 50 years, has 2 sons and 2 grandkids, and is a local celebrity on TuDiabetes for his longevity with diabetes and consistent, positive presence in the community. He eagerly helps fellow PWD on several online networks, including a facebook group for Joslin Gold Medalists, in addition to his friends on TuDiabetes.

Dan Fleshler, The Insulin Chronicles

Dan was diagnosed with Type 1 diabetes in 1962, and for the next 50+ years he knew more details about the Boston Red Sox than about the inner workings of his body. In 2012 Dan decided to read everything he could about diabetes, hoping to learn about its link to depression, which had plagued him for much of his life. Read his blog to learn what happened next, and his recent article in Diabetes Mine about Medicare and CGM.

Joanne Milo, The Savvy Diabetic

Joanne has had Type 1 diabetes for over 48 years. When she was diagnosed, at the age of 11, the tools available to manage and control diabetes were minimal. Urine testing and animal insulin, no insulin pumps or HbA1c testing, and certainly no CGMS.

In the past 5 years Joanne has been hospitalized several times, and has written a book about surviving the system.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live interview with Steven, Devon and Grasshopper, creators of #NoPricks

Prometheon Pharma launched it’s #NoPricks campaign in order to help bring it’s needle-free insulin delivery patch to market. Here’s their mission statement:

At Prometheon, we foresee persons with diabetes no longer needing to inject themselves daily with insulin. We envision vaccines that will not spoil in hot climates and can be administered easily, painlessly, and inexpensively to impoverished children in developing countries. We imagine once-weekly drug patches for mental health disorders and chronic diseases that maximize adherence to prescribed therapy by greatly simplifying drug regimens. We dream of fields and streams absent of medical waste because biodegradable products and manufacturing processes are created to protect the fragile ecosystems on our planet. Above all, we believe advances in drug delivery and new drug discovery can be made accessible to everyone in the world. At Prometheon, we are devoted to our mission and promise to advance global health equity and improve human existence through the pursuit and translation of scientific discovery.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Live Interview with Grace Murphy, 10-year-old Bionic Pancreas trial participant

Grace and her mom, Nancy, will be joining us fresh from Grace’s summer camp for kids with diabetes, where she got to try out the Bionic Pancreas for ONE WEEK!

Grace has had T1D since 2011 and uses an insulin pump and continuous glucose monitor to manage her diabetes. Ever since she was diagnosed, she has continued to be very active in soccer, dance, and she has even completed two Triathlons and she plans to do more.

The Murphys met Dr. Ed Damiano at the 2014 Children with Diabetes – Friends for Life Conference in Orlando, FL after his wonderfully informative and inspiring presentation on the Bionic Pancreas. Nancy spoke with Dr. Damiano about Grace participating in his upcoming clinical trial for T1D children ages 6-11. Grace very bravely agreed to participate. The trial was scheduled to begin just two weeks later at the Clara Barton Camp in Massachusetts. Grace successfully completed the official screening process then Mama Murphy scrambled to make all the travel arrangements and get Grace enrolled at the camp. (It was a lot of work!)

On July 20th, Nancy dropped Grace off at Camp, where there were about 100 kids at camp, of which 12 girls were in the study. (A study with the boys will be coming up soon at Camp Joslin.)

Nancy also has type 1 diabetes, for almost 45 years, and can speak to the incredible advances in T1D care from the time of her diagnosis to Grace’s test-run of the BP!

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Live Interview with Mark Ruefenacht, founder of Dogs 4 Diabetics

The Mission of Dogs for Diabetics is to:

Provide quality medical alert assistance dogs to insulin-dependent diabetics through programs of training, placement, and follow-up services; and to,
Develop, promote and advocate standards of quality, performance, support and disclosure for all medical assistance dog teams.

Mark Ruefenacht is an insulin-dependent diabetic, with a family history of blindness due to diabetic retinopathy and non age-related advanced macular degeneration. With this strong motivation, Mark began his work with assistance dogs in 1995, raising puppies for Guide Dogs for the Blind (GDB) of San Rafael, California. He continues this volunteer service today as a regional Guide Dog Puppy Raising Group Leader and also leads a Research Si Development Puppy Raising program under the direction of GDB.

ln 1999, Mark was able to couple his professional experience in forensic science with his guide dog experience to
develop innovative new training protocols for dogs to detect hypoglycemia (acute low blood sugar) in insulin-dependent
diabetics. In 2004, he founded Dogs for Diabetics (D4D), the first-of-its-kind assistance dog organization fully accredited with Assistance Dogs International (ADI) for the training, placement, and follow-up services of dogs to assist type 1
diabetics. Over 100 dogs have been placed with diabetics to assist in the detection and prevention of hypoglycemia.
These dogs now safeguard lives as well as help prevent diabetes-related disabilities such as blindness, amputations and other severe medical complications.

As a pioneer in the medical assistance dog industry, Mark continues to champion minimum training standards and ethics for all medical assistance dog organizations; as well as access rights under the Americans with Disabilities Act; and continued research into the training and use of dogs to assist in the mitigation of different medical conditions.

Mark has had the opportunity to share his story about his work with GDB and D4D as a speaker at numerous
international conferences. in 2010, he was recognized by Bark Magazine as one of the 100 most innovative dog trainers in the world. He has traveled around the world, working directly with numerous assistance and guide dog organizations to further the life-saving skills assistance dogs can provide to people with disabilities.

In 2012, Mark was awarded the Bronze medal and, in 2013, the Silver medal for the Jefferson Award to recognize his
work in promoting volunteerism in the community with GDB and D4D. He was a contributor on the revisions to the
American’s With Disabilities Act (ADA) of 2011 and also served on the Transportation Security Administration (TSA)
Disability Coalition to ensure thorough, but equitable, screening of persons with disabilities and assistance dogs.

He consults with corporations and government entities on the ADA and assistance dogs in the work place. Additionally, he
has served as an expert Witness on topics of assistance dog training and the ADA in the California court system.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live interview with Gary Scheiner, CDE

Gary is a certified diabetes educator, insulin-pump and continuous glucose monitor user and trainer, and Masters-level exercise physiologist. He serves on the advisory boards of several diabetes device manufacturers and pharmaceutical companies; volunteers for the Juvenile Diabetes Research Foundation, Diabetes Exercise & Sports Association, American Diabetes Association, and Setebaid diabetes camps; and serves on the faculty of Children With Diabetes. Gary teaches and art and science of blood-glucose balancing to people with diabetes throughout the world from his private practice, Integrated Diabetes Services as well as through his online school of higher learning for insulin users, Type 1 University.

Join us on the homepage of TuDiabetes for a live presentation and question-and-answer session with Gary Scheiner, founder of Integrated Diabetes Services and author of Think Like a Pancreas, The Ultimate Guide to Accurate Carb Counting, and now Until there is a Cure: the Latest and Greatest in Diabetes Self-Care.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live interview with Gary Scheiner, CDE

Gary is a certified diabetes educator, insulin-pump and continuous glucose monitor user and trainer, and Masters-level exercise physiologist. He serves on the advisory boards of several diabetes device manufacturers and pharmaceutical companies; volunteers for the Juvenile Diabetes Research Foundation, Diabetes Exercise & Sports Association, American Diabetes Association, and Setebaid diabetes camps; and serves on the faculty of Children With Diabetes. Gary teaches and art and science of blood-glucose balancing to people with diabetes throughout the world from his private practice, Integrated Diabetes Services as well as through his online school of higher learning for insulin users, Type 1 University.

Join us on the homepage of TuDiabetes for a live presentation and question-and-answer session with Gary Scheiner, founder of Integrated Diabetes Services and author of Think Like a Pancreas, The Ultimate Guide to Accurate Carb Counting, and now Until there is a Cure: the Latest and Greatest in Diabetes Self-Care.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube