Diabetes Advocates #MasterLab 2014 – Kerri Sparling @SixUntilMe on Mobilizing the diabetes community

http://diabetesadvocates.org/masterlab/
Mobilizing the diabetes community – Kerri Sparling (SixUntilMe)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Diabetes Advocates #MasterLab 2014 – Understanding Diabetes – Kelly Close, Adam Brown @diatribenews

http://diabetesadvocates.org/masterlab/
Understanding Diabetes: Knowledge & Solutions – Kelly Close, Adam Brown (Close Concerns, diaTribe)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Diabetes Advocactes #MasterLab 2014 – Getting the attention of decision makers – Rebecca Killion (PWD)

http://diabetesadvocates.org/masterlab/
Getting the attention of decision makers – Rebecca Killion (PWD)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Diabetes Advocates #MasterLab 2014 – How #diabetes can do it too: a roadmap for diabetes advocacy

http://diabetesadvocates.org/masterlab/
Manny Hernandez and Bennet Dunalp – How diabetes can do it too: a roadmap for diabetes advocacy

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Diabetes Advocates #MasterLab 2014 – @ManganielloHCM What has been accomplished by other patients

http://diabetesadvocates.org/masterlab/
What has been accomplished by other patients (and how) – Michael Mangianello (HIV/AIDS activist,HCM Strategists)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Diabetes Advocates #MasterLab 2014 – Roundtable: "What I wish patient advocacy looked like"

http://diabetesadvocates.org/masterlab/
This panel consisted of
Mike Swearingen (Moderator)
Panel: Christel Aprigliano (PWD),
Andy Balo (Dexcom),
Bruce Taylor (Roche),
John Agos (Sanofi),
Melissa Schooley (Medtronic),
Stayce Beck (FDA)

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Diabetes Advocates #MasterLab 2014 – Stayce Beck @US_FDA, Regulatory interest in public participation

http://diabetesadvocates.org/masterlab/
Regulatory interest in public participation by Stayce Beck from the Food & Drug Administration (FDA).

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Diabetes Advocates #MasterLab 2014 – Keynote: Paul Madden, Today’s Diabetes Advocacy Environment

http://diabetesadvocates.org/masterlab/
Keynote Address by Paul Madden: Today’s Diabetes Advocacy Environment.

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Diabetes Advocates #MasterLab 2014 – Opening by @AskManny

http://diabetesadvocates.org/masterlab/
Opening Remarks by Manny Hernandez, President and Founder of The Diabetes Hands Foundation.

The Diabetes Advocates MasterLab took place on July 2, 2014 in Orlando, Florida as part of the Children With Diabetes Friends For Life Conference.

The Diabetes Advocates MasterLab is about building a sense of what is possible. It’s a chance to learn from veteran advocates for other health issues. The MasterLab is about creating a formula for successful diabetes advocacy in the future.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live Interview Ginger Vieira: Dealing with Diabetes Burnout

Dealing with Diabetes Burnout: How to Recharge and Get Back on Track When You Feel Frustrated and Overwhelmed Living with Diabetes is an inspiring and empowering guide to managing the daily work and pressure of diabetes management – guilt and shame for imperfect habits, stressful daily decisions around food, the constant pricking of your fingers, technology frustrations, teaching friends and family how to be supportive, and more – that can lead to burnout. Vieira provides the tools and encouragement needed to help readers get back on track and make diabetes management a rewarding priority. Chapters directly address burnout in relation to: food, exercise, insulin dosing, blood sugar checking, fear of low blood sugar, being a caregiver/spouse of a person with diabetes, communicating more effectively with your doctor, taking a healthy “vacation” from diabetes, and creating realistic expectations and goals.

Author of Your Diabetes Science Experiment and Emotional Eating with Diabetes, Ginger Vieira has lived with Type 1 diabetes and Celiac disease since 1999. Today, she is an avid freelance writer and motivational speaker with a background as a certified cognitive coach, personal trainer, and Ashtanga yoga instructor specializing in coaching people with diabetes. She creates diabetes video blogs at her YouTube Channel and produces regular freelance content for various diabetes websites including DiabetesDaily.com and ASweetLife.org. In 2009 and 2010, Ginger set 15 records in drug-tested powerlifting with her best lifts including a 308 lb deadlift, 190 lb. bench press, and a 265 lb. squat. Today, she lives in Vermont with three dogs and her fella.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live Interview with Paul Wicks, Vice President of Innovation at PatientsLikeMe

An internationally recognized expert in the psychological aspects of neurodegenerative conditions, Paul is responsible for the scientific and medical validity of the PatientsLikeMe research platform. He leads a team of experts charged with conducting scientific research that generates insights from the personal health data shared by patient members. Under Paul’s direction, the PatientsLikeMe R&D team has produced numerous peer-reviewed publications in major scientific journals. These include Nature Biotechnology, Movement Disorders and European Journal of Neurology. In addition to working with the world’s foremost research organizations, the R&D team also provides professional services to the company’s commercial partners. Prior to joining PatientsLikeMe, Paul worked directly with patients from around the world to study cognition in rare forms of ALS and the psychological consequences of Parkinson’s disease. A frequent speaker on the power of personalized medicine in improving health outcomes, Paul has received numerous awards including the 2011 MIT Technology Review Humanitarian of the Year and the British Neuropsychiatry Association prize for best speaker, an honor he has won twice. Paul was named a TED Fellow in 2012, and in 2013 was a TED conference presenter. He completed his Ph.D. thesis at King’s College London at the age of 24.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live interview with Dr. William Polonsky

Dr. Polonsky is CEO and Founder of the Behavioral Diabetes Institute, the world’s first organization wholly dedicated to studying and addressing the unmet psychological needs of people with diabetes. He is also Associate Clinical Professor in Psychiatry at the University of California San Diego. Dr. Polonsky received his PhD in clinical psychology from Yale University and has served as Senior Psychologist at the Joslin Diabetes Center in Boston, faculty member at Harvard Medical School and Chairman of the National Certification Board for Diabetes Educators.

A licensed clinical psychologist and certified diabetes educator, he has served on the editorial boards of Diabetes Care, Diabetes Forecast, Clinical Diabetes, Diabetes Self-
Management and Diabetes Health. In addition to his many diabetes-related professional publications, he is authored several books for the lay audience (e.g., Diabetes Burnout: What to Do When You Can’t Take it Anymore) and co-edited several others for health care professionals (e.g., A CORE Curriculum for Diabetes Education).

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube