TuDiabetes Live Interview with Dr. Nancy Larco, caring for PWD in Haiti

Dr. Nancy Larco is Project Coordinator for an organization called FHADIMAC (Haitian Foundation for Diabetes and Cardiovascular Disease). FHADIMAC is private Haitian Foundation with over 6000 members. FHADIMAC is the only association working in Haiti towards playing an essential role in the daily lives of thousands of diabetics and hypertension sufferers and the lives of their parents by providing advice to allow them to “Live better with Diabetes and High Blood Pressure”.

In May 1987, the Association Haïtienne de Diabète (ADH) was created with the assistance of the Port-au-Prince Lions Club Central. The popular clinics were receiving an increasing amount of patients, numbering to over one hundred per session.

In 1989, ADH opened its headquarters at 208 Lalue, The Saint-François de Sales and Cité Soleil clinics were transferred to that location, and ADH was then able to provide other services, such as daily educative workshops and the sale of medication at a reduced price for members of the association.

Because of the high occurrence of hypertension among diabetics, ADH became FHADIMAC, Fondation Haïtienne de Diabète et de Maladies Cardio-Vasculaires, or Haitian Foundation of Diabetes and Cardio-Vascular Diseases, in 1993.

Since then, every day FHADIMAC welcomes patients who purchase medication at reduced prices, and young needy diabetics receive insulin at no charge, through a system of sponsorship. FHADIMAC also offers two weekly clinics for poverty-stricken patients, and provides daily educational workshops.

FHADIMAC is private Haitian Foundation with over 6000 members. FHADIMAC is the only association working in Haiti towards playing an essential role in the daily lives of thousands of diabetics and hypertension sufferers and the lives of their parents by providing advice to allow them to “Live better with Diabetes and High Blood Pressure.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Stump the Guru!! Conversation with Gary Scheiner, CDE

There were some technical glitches during this video chat. The video cuts in and out, but we still feel it was a great chat. Sorry for the inconvenience.

Bring your toughest diabetes questions!! Gary is up for a challenge.

Gary is a certified diabetes educator, insulin-pump and continuous glucose monitor user and trainer, and Masters-level exercise physiologist. He serves on the advisory boards of several diabetes device manufacturers and pharmaceutical companies; volunteers for the Juvenile Diabetes Research Foundation, Diabetes Exercise & Sports Association, American Diabetes Association, and Setebaid diabetes camps; and serves on the faculty of Children With Diabetes. Gary teaches and art and science of blood-glucose balancing to people with diabetes throughout the world from his private practice, Integrated Diabetes Services as well as through his online school of higher learning for insulin users, Type 1 University.

Join us on the homepage of TuDiabetes for a live presentation and question-and-answer session with Gary Scheiner, founder of Integrated Diabetes Services and author of Think Like a Pancreas, The Ultimate Guide to Accurate Carb Counting, and now Until there is a Cure: the Latest and Greatest in Diabetes Self-Care

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live interview with Mike McCabe, Esq.: the legal side of diabetes in school

Mike McCabe, Esq. has been a true champion for Safe at School in California. In 2007 he brought the suit against the California Department of Education to allow children with diabetes to receive assistance with insulin administration from trained staff when a school nurse is not available. He won a landmark settlement which was appealed. Finally, at the end of May of this year, the California Supreme Court heard arguments on this case.

Just as he has from the start of this battle, Mike was instrumental in preparing the attorney representing the American Diabetes Association in the highest court in the state. Though the outcome will likely be unknown until August, it is very clear that Mike has shown tremendous leadership as a volunteer to ensure that children living with diabetes have their share of care and opportunities by taking this issue as far as possible in the California legal system.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live Interview with Bennet Dunlap about Strip Safely

Bennet is a parent of two type 1 diabetic teens and he has pre-type 2 diabetes himself. Initially he had much to learn as managing chronic disease can be difficult and isolating. As time went on he found that good communication leads to better physical and emotional care. The process of moving from scared parent of a chronically ill child to advocate has provided him with knowledge he shares. Today, he blogs about Type 1 diabetes. He writes about raising children to grow to independently manage their diabetes and he works with other advocates to influence the legal and regulatory framework that constrains diabetes care. He was an amateur in health communications. He recently obtained a masters degree in health communications to help a wider population of people living with diabetes as a professional.

In 2012, Bennet developed Drinking With Diabetes, a resource for young adults with Type 1 Diabetes (and members of their support networks!) interested in learning how to drink responsibly:
http://www.drinkingwithdiabetes.com/

His latest endeavor is StripSafely (http://StripSafely.com), an advocacy initiative that you have been exposed to through TuDiabetes and other diabetes social media. We are honored to have Bennet join us today to tell us more about this important initiative, where it’s at and where it’s going.

4 ways to engage with StripSafely (do all of them):
1) Via Twitter: http://www.stripsafely.com/the-twitter-page/
2) Via letter: http://www.stripsafely.com/sample-page/
3) Participating in the Strip Safely edition of Diabetes Art Day: http://www.diabetesartday.com/diabetes-art-day-2013/special-edition-strip-safely/
4) Completing and sharing this petition:
http://diatribe.org/petition

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Live Interview: Islet Cell Transplantation with Drs Gebe and Vernon

In a major collaborative effort led by matrix biologist Robert Vernon and immunologist John Gebe, scientists at the Benaroya Research Institute are developing a Bioengineered Implant (BI) for treatment of type 1 diabetes (T1D) — an autoimmune disease. The BI will combine purified islets of Langerhans (the tiny, insulin-producing units of the pancreas) with innovative structural supports made of natural biomaterials.

The BI is designed to provide a controlled microenvironment that promotes the survival and function of the transplanted islets and includes: 1) a permeable extracellular matrix (ECM) hydrogel to provide physical support for the islets and ingrowing vasculature, 2) a sustained-release component that will deliver a set of bioactive compounds that promote islet survival, vascularization, and immunoprotection, and 3) a supportive scaffold to retain the islets, ECM hydrogel, and sustained-release component within a protective, unified structure. The combination of these design elements in a single device represents a novel approach to islet transplantation. The overall goal of this research is to produce a BI that can be implanted into patients in a minimally-invasive manner (perhaps under the skin) and which would eliminate the need for exogenous insulin therapy.

Description of study in researcher’s own words
Islet transplantation can be successful where the donor of the islets and the recipient of the transplant are genetically identical (as in syngeneic strains of mice). However, islet engraftment fails in human patients with T1D as a consequence of: 1) poor shortterm survival of the islets as a result of post-implantation stress, and 2) long-term immune-mediated rejection of the islets caused by tissue mismatches between donor and recipient (alloimmune rejection) and continuance of autoimmunity. Our working hypothesis for this project is that a spectrum of bioactive compounds that promote islet survival, islet vascularization, and protection of islets from host immune attack can be combined in a single device. Importantly, the influence of these compounds would be restricted to the BI and the region immediately surrounding it (using sustainedrelease technology), thereby limiting harmful systemic effects. Advanced versions of the BI might also be used as platforms for patient-derived stem cell transplantation, incorporating bioactive compounds that would promote the survival and differentiation of stem cells into insulin-producing cells.

Roles of the BRI researchers
Dr. Robert Vernon is a matrix biologist and bioengineer who provides the expertise in designing the BI and the system for sustained release of bioactive compounds. His understanding of the importance of revascularization to islet survival is instrumental to the success of this project. Dr. John Gebe is an immunologist with expertise in animal models of T1D. He conducts the hands-on testing of the device in vivo and also determines which immunological systems can be targeted to promote long-term protection of islets from allo- and autoimmune rejection.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Diabetes Advocates webinar with Peter Staley @PeterStaley

Peter Staley has been a long-term AIDS and gay rights activist, first as a member ofACT UP New York, then as the founding director of TAG, the Treatment Action Group. He served on the board of the American Foundation for AIDS Research(amfAR) for 13 years and then founded AIDSmeds.com, an educational website for people living with HIV. Staley is a leading subject in the Oscar-nominated documentary How to Survive a Plague.

Aug. 21, 2013 @ 4 pm PT he joined diabetes advocates to share his journey and lessons, for all of us to learn from it.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Live interview with Dr. Lois Jovanovič "Diabetes and Pregnancy"

Dr. Jovanovič is Chief Scientific Officer of Sansum Diabetes Research Institute, a Clinical Professor of Medicine, University of Southern California-Keck School of Medicine, and Adjunct Professor of Biomolecular Science and Engineering and Chemical Engineering, University of California-Santa Barbara.

Dr. Jovanovič completed her undergraduate degree from Columbia University, and a master’s degree in Hebrew Literature from The Jewish Theological Seminary in New York, NY. She received her medical degree from The Albert Einstein College of Medicine in New York, NY, and completed her training and fellowship in Internal Medicine, Endocrinology and Metabolism at the New York Hospital, Cornell University Medical College.

Jovanovič’s pioneering work in diabetes and pregnancy began with her premise that a diabetic woman’s chances of having a healthy baby could be on a par with a healthy, non-diabetic woman. In her beginning year of fellowship at Cornell University, New York Hospital, her first research study showed that strict monitoring and absolute normalization of blood glucose could yield healthy babies. A year later, she published a larger trial of 52 diabetic women that showed conclusively that diabetic women, even those with severe disease, could have healthy babies (Am J Med 1981; 71: 921–27).

Jovanovič proceeded to develop a program to monitor a woman’s blood glucose around the clock and provide treatment strategies to achieve and maintain normal blood glucose concentrations throughout pregnancy. These protocols for intensive insulin delivery now set the standard for strict glucose control in pregnancy. Through her research she has changed the world of diabetes and pregnancy.

Early in her career she became a principal investigator of the Cornell program for both the Diabetes in Early Pregnancy Study, and the Diabetes Control and Complications Trial (DCCT) a decade-long multicenter clinical trial, which showed that strict glucose control could reduce risk of long-term complications. These studies provided important information about the prevention of birth defects and perinatal complications in pregnancy.

Jovanovič has elevated Sansum Diabetes Research Institute as a center of excellence for diabetes and pregnancy. She is responsible for establishing global guidelines of care adopted by the International Diabetes Federation, American Association of Clinical Endocrinologists, The Endocrine Society and the American Diabetes Association and travels extensively throughout the world teaching her protocols to physicians, nurses, dietitians and educators. In December 2009 she attended the opening of the new Bildirici Center for Diabetes Care and Research in Netanya, Israel where all of their nurses had been trained in her protocols. Through community outreach education, teaching and working one-on-one with thousands of pregnant women in the Latina population locally, she has shown that her protocols also apply to women with type 2 and gestational diabetes mellitus.

Throughout her research Dr. Jovanovič has continued to focus on how understanding diabetes in pregnant women may help to broaden knowledge and treatment options for all people with diabetes. Always in the forefront of research, Dr. Jovanovič and other staff members are currently working on the development of an artificial pancreas in collaboration with the Department of Chemical Engineering at the University of California Santa Barbara. Clinical trials began in 2011.

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


Chief Product Architect of Asante Solutions – makers of the Snap Insulin Pump, Mark Estes

Mark has over 26 years of medical device experience in both marketing and engineering. Prior to joining Asante, Mark was the Director of Marketing for Advanced Bionics — a Boston Scientific Company. While there, he brought to market the company’s first commercially available implantable spinal cord stimulator for the treatment of chronic pain. Prior to Advanced Bionics, Mark was the Director of Marketing for Medtronic MiniMed. There, he helped develop and launch the Paradigm insulin pump and also helped to integrate Continuous Glucose Monitoring technology into the pump. Before Medtronic MiniMed, Mark worked his way up from Design Engineer to Senior Market Manager at Respironics. To date, he holds over 35 medical device patents. Mark earned his B.S. in Mechanical Engineering and MSIA from Carnegie Mellon University.

SnapPump.com

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube


TuDiabetes Live interview with Kerri Sparling, Diabetes Advocate and creator of the blog SixUntilMe

Kerri Morrone Sparling was diagnosed with type 1 diabetes on September 11, 1986, and for much of her life, she was the only diabetic she knew.

She started Six Until Me in May of 2005 because she was tired of Googling “diabetes” and coming up with little more than a list of complications and frightening stories.

But then she learned about blogs, and the power of sharing our stories online. When she first started blogging, she was one of four or five diabetes bloggers. Now she is a proud member of a vast diabetes community who prove every day that we not alone with this disease.

Kerri is a patient blogger, freelance writer, and social media consultant.

But there’s more to Kerri than diabetes….

Category: Nonprofits & Activism
Uploaded by: Diabetes Hands Foundation
Hosted: youtube