The DOC , Type 2 and Me

Written by Gary Stem

I am long-term Type 2 diabetic, diagnosed in the mid-1990’s. I’m like a lot of T2’s in that I do not remember the date or even the year. I progressed through all the available treatments of the day until one day my doctor said it, “Gary I believe it is time for you to start insulin treatment.” I knew it was coming, I had been threatened with it and had resisted it for years. I walked out of the office that day with a Levemir prescription; it was that day that I found the diabetic online community in the form of TuDiabetes.

Today I am an insulin pumping Type 2 diabetic. How I got to this point has been shaped by my participation at TuDiabetes. The knowledge I gained helped to guide my way; I soon learned that basal insulin alone would not be enough, soon MDI was prescribed and finally a pump, I have been pumping now for six years.

How my diabetes looks can best be summed up by something, a Type 1 friend said to me. She said, “Gary, Your diabetes looks almost exactly like mine.” I hadn’t realized it until then, but she was right. I do all the things a Type 1 does. I count carbs and calculate boluses, I monitor my blood sugar, and I do corrections when needed. I experience highs and lows. I do basal testing, and I have defined carb ratios and correction factors. I do pretty much everything any other insulin-dependent person does.

The diabetic online community, TuDiabetes, has been my information source and my lifeline, I was not taught all I needed to know by the medical community, I learned it from the members of TuDiabetes, I sometimes feel that they saved me. I learned more from them than about basals and boluses, more than low carb dieting and exercising, I learned that others out there cared about me. They encouraged me, and they consoled me. I learned it is more than the diabetic online community; it is a diabetic online family.

I realized in the earliest part of my involvement in this diabetic online family that I wanted to give back to it. I did everything I could think of to provide support. Eventually, I was asked to be part of the TuDiabetes Administrative Team, I have served on this team for six years now, it is my way of giving back to the community.

For all TuDiabetes has done for me the significant thing about it is not how it has helped me. I am reminded of the importance of TuDiabetes each time I hear a new member or even a not so new member says this or something similar, “I am so glad I have found this community of people like me, I no longer feel alone.” I smile each time I hear this said; it confirms our purpose.

TuDiabetes exist so that no person touch by diabetes should feel alone. I think that is true for the entire DOC. I am proud to be a part of it.


Connect with Gary and many others in our Forum. Join the conversations!


Friends, Family, and Diabetes

One of the best ways to predict how well someone will manage diabetes: how much support they get from family and friends.

Daily diabetes care is a lot to handle, from taking meds, injecting insulin, and checking blood sugar to eating healthy food, being physically active, and keeping health care appointments. Your support can help make the difference between your friend or family member feeling overwhelmed or empowered.

What You Can Do
    • Learn about diabetes. Find out why and when blood sugar should be checked, how to recognize and handle highs and lows (more below), what lifestyle changes are needed, and where to go for information and help.
    • Know diabetes is individual. Each person who has diabetes is different, and their treatment plan needs to be customized to their specific needs. It may be very different from that of other people you know with diabetes.
    • Ask your friend or relative how you can help, and then listen to what they say. They may want reminders and assistance (or may not), and that can change over time.
    • Go to appointments if it’s OK with your relative or friend. You could learn more about how diabetes affects them and how you can be the most helpful.
    • Give them time in the daily schedule so they can manage their diabetes—check blood sugar, make healthy food, take a walk.
    • Avoid blame. People with diabetes are often overweight, but being overweight is just one of several factors that can lead to diabetes. And blood sugar levels can be hard to control even with a healthy diet and regular physical activity. Diabetes is complicated!
    • Step back. You may share the same toothpaste, but your family member may not want to share everything about managing diabetes with you. The same goes for a friend with diabetes.
    • Accept the ups and downs. Moods can change with blood sugar levels, from happy to sad to irritable. It might just be the diabetes talking, but ask your friend or relative tell their health care team if they feel sad on most days—it could be depression.
    • Be encouraging. Tell them you know how hard they’re trying. Remind them of their successes. Point out how proud you are of their progress.
    • Walk the talk. Follow the same healthy food and fitness plan as your loved one; it’s good for your health, too. Lifestyle changes become habits more easily when you do them together.
    • Help them feel the power to manage their diabetes.
            • Shakiness.
            • Nervousness or anxiety.
            • Sweating, chills, or clamminess.
            • Irritability or impatience.
            • Dizziness and difficulty concentrating.
            • Hunger or nausea.
            • Blurred vision.
            • Weakness or fatigue.
            • Anger, stubbornness, or sadness.Know the lows. Hypoglycemia (low blood sugar) can be dangerous and needs to be treated immediately. Symptoms vary, so be sure to know your friend’s or relative’s particular signs, which could include

      If your family member or friend has hypoglycemia several times a week, suggest that he or she talk with his or her health care team to see if the treatment plan needs to be adjusted.

    • Offer to help them connect with other people who share their experience. Online resources such as the American Association of Diabetes Educators’ Diabetes Online Community[1.27 MB] or in-person diabetes support groups are good ways to get started.
Better Together

The most important thing is quality of life, yours and theirs. Sure, there will be highs and lows—blood sugar and otherwise—but together you can help make diabetes a part of life, instead of life feeling like it’s all about diabetes.

Content source: National Center for Chronic Disease Prevention and Health PromotionDivision of Diabetes Translation

How to help a loved one cope with diabetes

 

When people have the support of their family and friends, they are able to better manage their diabetes. It is a hard disease to handle alone. You can help your loved one cope with diabetes by showing your support.

Learn about diabetes.

There is a lot to learn about how people can live well with diabetes. Use what you learn to help your loved one manage his or her diabetes.

  • Helping a loved one cope with diabetes begins with talking.
  • Ask your loved one to teach you about how he or she is managing diabetes.
  • Join a support group – in person or online – about living with diabetes. Check with your hospital or area health clinic to find one.
  • Read about diabetes online.
  • Ask your loved one’s health care team how you can learn more about managing diabetes.
  • Ask your loved one about coping with diabetes and how you can help.

Here are sample questions:

  • Do you ever feel down or overwhelmed about all you have to do to manage your diabetes?
  • Have you set goals to manage your diabetes?
  • What things seem to get in the way of reaching your goals?
  • What can I do to help? (Example: Are there things I can do to make it easier for you to live with diabetes? If you want to be more active, will it help if we take walks together?)
  • Have you talked to your health care team about your diabetes care and how you want to reach your goals?

How you can help.

Try some of these tips to help your loved one.

  • Find ways to help your loved one manage the stress of living with diabetes. Being a good listener is often the most important thing you can do to help.
  • Ask your loved one if he or she would like reminders about doctor visits, when to check blood sugar, and when to take medicine.
  • Help your loved one write a list of questions for the health care team.
  • Eat well. Help your loved one make meals that include foods such as fruits, vegetables, and whole grains.
  • Find things you can do together such as walking, dancing, or gardening. Being active is a great way to handle stress.
  • Walking together daily gives you time to talk and stay active.
  • Cut back on sweets by serving fresh fruit for dessert.
https://www.niddk.nih.gov/health-information/health-communication-programs/ndep/ndep-health-topics/help-cope-diabetes/Pages/publicationdetail.aspx